Laugh. No? Okay. Smile.

Laugh (or at least smile).  Having a sense of humor is a great antidote for stress.  And let’s face it, sometimes you just gotta stand back, shake your head, and laugh.  Better yet, find someone who can have a laugh along with you.  Humor helps you to maintain your perspective and avoid getting caught up…

Knowledge is power.

Update your knowledge – continuously. Learn how to monitor your own symptoms, including any new developments that you may want to talk to your doctor about.  Stay abreast of the newest thinking about what you can do to take the best possible care of yourself.  And medical science is constantly on the move, so keep…

Be mindful.

Someone once said to me, “On the day I received my diagnosis, I listened to my favorite music and I felt like I was hearing it as I had never heard it before.”  Practice being in the present moment, and not caught up in rehashing the past or worrying about the future.  Be aware of…

See something, say something. In the moment.

Use teachable moments to educate your partner.  Acknowledge the words or gestures that promote a positive atmosphere in your household, no matter how simple.  This is the best way to let your partner know what he/she can do to promote harmony at home.  Use magic works like “Thank you” and “That was so nice for…

Get inspired.

Spend time with an inspirational book.  Choose an author who speaks to you in some way.  Keep planting those seeds of positive intention by reading a little bit every day, even if only a few paragraphs.  Inspirational authors often make available video clips that you can watch online.  Exposing yourself to inspirational thought can be…

Happy New Year!

So, out with the old year and in with the new one.  I am looking forward to 2014 and hope you are too.  How about adding something new to your life this year?  Check out my latest article to get some ideas.  http://justgotdiagnosed.com/resources/new-year-time-get-bigger-life/

Just Got Diagnosed. Again.

A new diagnosis means change.  New symptoms, maybe limitations.  Treatment regimens.  Adjusting your routine to accommodate additional medications.  Concerns about interactions and side effects.  Lifestyle changes.   Annoying, if not downright disruptive.  And what does all of this mean for the future?  Here’s how to cope: A new diagnosis means change.  New symptoms, maybe limitations.  Here’s…

Does consulting a specialist feel like cheating on your PCP?

Uncomfortable about how your PCP will react if you consult with a specialist?  Consulting a specialist is not the same as criticizing your primary care physician’s approach, nor does it or imply that he/she is incompetent in any way.  So approach the conversation by emphasizing that your decision is based on a desire for the…

Chronic Communication at Work

If you are living with a chronic condition, lots of different issues can come up at your job.  Disclosing your diagnosis to your co-workers, dealing with the aftermath of symptoms at work, and of course the need to call in sick from time to time, or often.  I am writing a series of articles,, “Chronic…

Off to Camp!

I am at Family Inhibitor Camp this weekend at Victory Junction in North Carolina.  It is a camping experience for children living with hemophilia and inhibitors from all over the country.  It’s a weekend of fun, support, and education.  I am doing workshops for parents on “chronic communication” and self-care, and a workshop for teens…